Day 117-Saturday 30th October 2010

While some of you may be thinking that I am going for the record of genuine 999 calls made in one I can assure you that every call has been necessary to get me out of a predicament and the call made yesteray was no exception. Once again stuck on the floor and needing assistance and once again the crew turned up trumps. Almost disaster struck yesterday when the internet connection broke. Please to say now resolved so should be no interuption in service from here on. Thanks to all the people involved. Today in the morning I had a small seizure , although it only lasted 15 minutes. Thank you to Toby for typing this.

Day 112 - wednesday 27th October 2010

Well,everything continues to be comfortable with a super bed and the carers coming in 4 times a day.However the daytime tv is sooooo rubbish i am seriously considering entering some of the daytime competitions to try and win some money.Still no sight of the carers bike but promised very soon i am looking forward to seeing it thanks to Cory for typing this blog left arm still useless swollen left hand hope it's not limphodeama.Boys still enjoying half term and provide breakfast and lunch for me also drinks when required.

Day 110 -Monday 25 October 2010

Another relaxing weekend with visitors on saturday and sunday one of my carers has announced that she is getting a motorbike.The only problem i can see is that she has a minor mohawk haircut and with a helmet on.....but she is very excited so i am never the less and can't wait to see it.Have received a gift of the new professor Layton game on the ds so hope to play that is instead of watching rubbish day time tv.Thank you Cory for typing this blog for me.

day 109 - sunday 24th October 2010

Last night I had a tiny seizure and so I increased my medication today. My visitors have been kind and brought lots of edible gifts such as american baked cheesecake and chocolate. The last of the parish records have finally exited The Firs and I wish all the new clerks the very best of luck in their new roles. Cannot wait for the carers to perform their usual bed-wash tomorrow to remove all unwanted scraps of food from my bed!

Day 107-Friday 22nd October 2010

Thank you to Cory for typing this blog today.Once again a quiet day,had some visitors which was very nice and long may it continue.Day time tv continues to be rubbish but thank goodness it is just background noise.The boys continue to be helpful to Maurice and i hope it won't be a flash in the pan as he needs help with the house.The boys are looking forward to half term and i am looking forward to spending time with then.

Day 105 - Wednesday 20th October 2010

Thanks to Janet for the reminder and for typing this blog today. Daytime tv continues to be as boring as hell. Luckily magazines are a little more interesting.
Cory got a good report at the open evening that Maurice went to and Toby still seems to be settling well. All four parishes now have new clerks - I am sure they will all prove capable and I wish them the best of luck.
The hospital bed is amazing and I can get into positions I didn't believe were possible even before I was ill. The bed and me have been booked by a couple of clerks (no names mentioned) to take part in the New Years Day Pram Race 2011, so all invited to watch this spectacle.
I have had a lot of visitors which has been really lovely, if you are thinking of coming to see me (which would be great), please ring my mobile first as mobility is an issue and I can't get to the door. Hope to see you soon.

Day 101 - Saturday 16th October 2010

The carers are great. I can't fault them at all. Noy only do they check on me I have had string of visitors to see me. That is great but the only problem with thay is that ~~~~~I am unable to get to the door to answer it !!!!!!! Yes mobuility is still a problem.

Day 99 - thursday 14th October

With the help of Toby i'm afraid I am going to be a little profound today.

Where difficultys arise ... hang in there. Difficultys arise in the lives of us all and what is most important is dealing with the hard times, coping with changes, and getting through to the other side where the sun is still shining just for you.

So... beginning today and lasting a lifetime, hang in there and don't be afraid to feel that the morning sun is shining just for you.

Find something to be grateful for every day. Every day be full of awareness of the beauty around you. Be full of gratitude for friends and family, for the goodness you find in others and for your health and all you are capable of. Be full of expectance of yourself and others, appreciate the gifts of laghter and fun in your life and find contemptment in knowing that you can always control your ability to look on the bright side.

Love yourself every day and remember how many people love you. Do good things for others. Always see the goodness in this world. Most of all, be happy, for when you are happy you have the key that will open all the worlds doors for you.

day 98 wednesday 13th ~october 2010

the carers are fantastic, theres nothing they wont do. They come in four times a day. There are also alot of visitors coming to see me. Otherwise it has been a normal day, staying in bed, watching TV and having conversations with people that are in the house. I have been catching up on my reading, magazines, books and watching the commonwealth games. I like watching the diving the most, watching them go in the pool I enjoy. Tom Daley is very good. My lovley husband and children look after me when the carers are not around, cooking, cleaning up the house,

Day 97 - Tuesday 12th October 2010

Have to say the Carers are very good and if it wasn't for them ~I would definitely be pen and inking - I get a lovely wash in the morming which is great as I cannot get upstairs to get to the bathroom. The hospital bed is very comfortable too. The carers are very obliging and happy to help with anything. They sre very friendly too and nothing is too much trouble.

Day 93 - Friday 8th October 2010

Well I have been somewhat neglectful of my blog but there has been a lot going on too so I hope to bring you up to date now.

Since the biopsy I have had quite a lot of pain in my left shoulder that I put down to the biopsy but as the days move on I realise actually it may well be cancer on my lung. Maurice tells me that the morphine feed is ready when necessary. As far as I aam concerned the start of morphine is the start of the slippery slope and I will avoid it until it is absolutely the last possible option.

At the moment co-codomol is fitting the bill, so let's see how we go.

My mobility has deteriorated substantially in that I cannot even get to the front door if anyone calls by!

Have had visits from the District Nurse. Occupational Therapist and Macmillan, the result of which is a hospital bed that has been put downstairs because I have trouble getting upstairs, a comode and a care plan that will start on Saturday when carers will come in four times a day - that will give Maurice some breathing space. The bed is amazing, moves all ways - am thinking of putting on a show and selling tickets - ha ha ha.

Day 89 - Momday 4th October 2010

So we have received the result of the biopsy and what was the result that we needed? A breast cancer cell that is HER2 positive. Guess what we got? The worst posible scenario - MELANOMA! MELANOMA! hOW CAN THAT BE? That wasn't supposed to happen. There's no treatment for melanoma in the brain and likelihood is that's what it is.

Day 87 - Saturday 2nd October 2010

Had a visit from my GP late yesterday evening - first housecall since the start of this final journey. He is arranging for the District Nurse to call round on Monday morning.

Well you sre probably wondering how the sleeping arrangements worked last night - as far as I am concerned it went like a dream - no problems - but Maurice might hsve something to say about it - not sure it is printable.

Had some visitors over today -had a lovely day but not much else to say for the blog.

Day 86 - Friday 1st October 2010

Well after yesterday's little episode what more could happen? Anyone that knows me well, knows that there surely has to be something else - and you'd be spot on. Maurice said if I felt unsteady coming down the stairs then come down on my bottom, so I gave it a go and then made it to the bottom stair and - guess what - got stuck - couldn't get up - so another call to 999! They are brilliant! Got me up in no time at all. What am I like? Let's hope the weekend goes without the need for a 999 call.

Because of the problems getting up and down the stairs Maurice has now moved a bed downstairs ~ I am going to give it try and see how it goes this weekend.